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Anyone looking for
materials about the lives and experiences of women with disabilities a
few years back would have found little to read. Today there is a growing
body of literature addressing different aspects of the lives of women
and girls with disabilities. At
the same time, only a small proportion of this is inclusive of women with
developmental disabilities.
These writings do
not fall into one field of study; instead, they come from a wide range
of disciplines and are often interdisciplinary in nature. As a result
these materials are scattered across many fields of study which makes
it hard to gain an overview of what already exists and even harder to
know where to look for materials.
Because of how hard
it is to find writings about women with disabilities one frequently hears
statements like, "There is nothing written about women with disabilities."
Although much remains to be learned about women and girls with disabilities,
this selected bibliography shows that there already exists a substantial
body of literature on the topic.
This
section is not a comprehensive listing of the literature on women with
disabilities. Instead we have selected writings that reflect the diversity
found within this literature. We hope this section will serve as a useful
starting point for people who are looking for materials on women with
disabilities.
TITLE: The
new our bodies, ourselves: A book by and for women
AUTHOR: The Boston's
Women's Health Book Collective
PUBLICATION INFORMATION:
1984
Simon & Schuster
Simon & Schuster Building
Rockefeller Center
1230 Avenue of the Americas
New York, NY 10020
When Our bodies,
ourselves was first published in 1969 there was practically no information
easily available about women's health issues. The first publication of this
book encouraged many women to explore the health issues most important to
them. This new edition of Our bodies, ourselves has been considerably expanded
from previous editions of the book. One of the additions is the inclusion
of women who have disabilities and a disability perspective is presented
in most chapters. Our bodies, ourselves has finally become
a book on women's health issues for all women. Hopefully this book will
serve as a model as to how other generic books on women's health, education,
sexual abuse, and so on, can include disability issues as an integral part
of the topic. Although the authors should be praised for including women
with disabilities it should also be mentioned that some issues of importance
to women with disabilities get much less attention than needed. Examples
of this are the problems some disabilities can cause during pregnancy and
childbirth.
TITLE: With the power of each breath:
A disabled women's anthology
AUTHORS: Browne,
S. E., Connors, D., & Stern, N. (Eds.)
PUBLICATION INFORMATION:
1985
Cleis Press,
A Women's Publishing Company
P.O. Box 8933
Pittsburgh, PA 15221
The quality of writing
of this collection of essays, poetry, interviews, and first-person account
is uneven and the editors' articulate and informative introductions sometimes
outshine the collected pieces. All the women who contributed to the book
have a disability. Most of the book consists of first person accounts
of being a female and having a disability, but a few conceptual pieces
are also included. The stated purpose of the book is to "bridge the gap
that separates women with disabilities from one another and from the non-disabled
world" (p. 10) and the book reflects these women's resistance against
the silencing of women with disabilities.
The editors set out
with a strong political commitment to produce an anthology representative
of all women with disabilities. Although that proved to be impossible,
the book addresses a broad spectrum of disability issues and the contributors
cross the lines of race, age, class, sexual orientation, geographical
location and type of disabilities. The book also includes interviews with
women who are labeled mentally retarded, a group which often has been
excluded in the literature on women with disabilities. This book is born
out of a group of women with disabilities who also are feminists and reflects
their experiences of discrimination because of their disabilities in addition
to the traditional sexism. The majority of the pieces in this book are
angry and speak out with bitterness regarding the isolation, despair and
powerlessness women with disabilities face in their lives. Some of the
pieces are both inspiring and very moving.
TITLE: Women
and disability: The double handicap
AUTHORS: Deegan,
M. J., & Brooks, N. A. (Eds.)
PUBLICATION INFORMATION:
1985
Transaction
Books
Rutgers University
New Brunswick, NJ 08903
This book is the first
major collection of scholarly writing about women who have disabilities
and contains 11 chapters dealing with various aspects of the lives of women
with disabilities. The major factors that unify this collection are a central
focus on the double minority status of women with disabilities, the lack
of information available about their lives and experiences, and the need
to change the conditions that perpetuate the structural inequality women
with disabilities experience.
Two of the chapters,
Chapter 2, by Fine and Asch, "Disabled Women: Sexism without the Pedestal,"
and Chapter 4, by Deegan, "Multiple Minority Groups: A Case Study of Physically
Disabled Women," provide a conceptualization of women with disabilities
that has had a significant impact on other people's thinking and writing
about women with disabilities. In her chapter, Deegan points out the multiple
discrimination against women with disabilities; as a woman and as a person
with a disability. Deegan's discussion of the effects of the multiple
minority status of women with disabilities is useful in examining structural
discrimination in employment, education and other areas. Fine and Asch's
conceptualization of disabled women as "roleless" has already gained much
note in subsequent literature. The remaining sections focus on specific
types of disabilities and their consequences for women or specific problem
areas, such as mothering and self-help. Other issues covered are the economic
effects of a multiple minority status and the negative consequences of
present policies on the lives of women with disabilities. The book is
a beginning step in unraveling the interaction between more than one minority
status being held concomitantly by an individual and a group. While the
quality of the articles is not uniform, they all provide insights into
the problems and experiences of these women and add immeasurably to the
conceptual and theoretical understanding of the lives of women with physical
disabilities. One shortcoming of the book is that it only deals with women
who have physical disabilities. Another is that rather than examining
class and race issues, it is dominated by white middle class views and
values.
TITLE: Ourselves growing older
AUTHORS: Doress,
P. B., & Siegal, D. L.
PUBLICATION INFORMATION:
1987
(In
conjunction with the Midlife and Older Women's Book Project and The Boston's
Women's Health Book Collective.)
Simon and Schuster
Simon & Schuster Building
Rockefeller Center
1230 Avenue of the Americas
New York, NY 10020
Like its predecessor,
Our bodies, ourselves, this book builds upon the tradition
of self-help and focuses on prevention and changes to create healthier
life-styles. It is aimed at promoting self-acceptance of older and middle
aged women by themselves and stresses the empowerment of midlife and older
women in confronting the challenges of growing older. This is an informative
book which covers a wide range of topics, including a variety of physical
and mental ailments common to middle age and older women. Included throughout
the text are practical tips for dealing with specific physical and mental
problems. A resource guide in the back of the book lists articles of interest,
a guide to community services and support groups. A good resource book.
TITLE: Across
borders: Women with disabilities working together
AUTHORS: Driedger,
D., Feika, I., & Batres, E. G. (Eds.)
PUBLICATION INFORMATION:
1996
Gynergy
Books
P.O. Box 2023
Charlottetown, PEI C1A 7N7
CANADA
This edited book with
an international perspective highlights the experiences of women with disabilities
working together. Each chapter is written by disabled women leaders. The
chapters explore how women with primarily physical disabilities join together
to demand participation in society and document their experiences of working
together and of forming disabled women's self help groups. Across
borders begins with a description of the growth of the disability
movement worldwide and discusses the issues facing women with disabilities
in the areas of employment, education, attitudes, and violence. The essays
are grouped by region, and also include poetry and photographs.
TITLE: Imprinting our image: An international
anthology by women with disabilities
AUTHORS: Driedger,
D., & Gary, S. (Eds.)
PUBLICATION INFORMATION:
1992
Gynergy Books
P.O. Box 2023
Charlottetown, PEI C1A 7N7
CANADA
The editors compiled
articles by women with disabilities from 17 countries. They stress the importance
of understanding disability not as an inherent tragedy but as a social problem
created by a lack or sensitivity and awareness to the experiences of women
with disabilities and to the physical, social, and psychological barriers
that occur as a result of this insensitivity. The book is organized around
its central principle that women with disabilities are citizens with the
means to contribute to their societies. It is divided into five sections.
They include: Our Image in the Family, Our Image in the Community, Imprinting
Our Image on the World, In Spite of the World, and Dealing with the World.
TITLE: Women with disabilities: Essays
in psychology, culture and politics
AUTHORS: Fine,
M., & Asch, A. (Eds.)
PUBLICATION INFORMATION:
1988
Temple University
Press
Philadelphia, PA 19122
This is the a comprehensive
edited collection of scholarly writing about women with disabilities. Fine
and Asch, the editors of this volume, have, for a number of years, been
involved in examining what it means to be a woman with a disability in today's
society. Their early conceptualization of the problems facing women with
disabilities has influenced and informed other people's thinking. Now these
two women have collected the work of 22 writers and thinkers to explore
the psychological, cultural and political dilemmas currently faced by approximately
18 or 19 million women with disabilities in America. The volume covers a
wide range of issues, reviews the most recent thinking on this subject and
raises provocative new areas for future exploration.
The 13 essays in
the volume are loosely organized in three categories; "Bodies and Images,"
"Disabled Women in Relationships," and "Policy and Politics." In addition
there is a lengthy introduction by Asch and Fine where they review past
work (and neglect) on this subject and point toward future exploration.
The editors also close the book with an "Epilogue: Research and Politics
to Come." Like all collections of essays, the quality is uneven. At the
same time this is an important document about the lives of girls and women
with disabilities in American society today. It is also notable that the
editors have made attempts to cover broader issues than previous collections
on women with disabilities. First, this volume covers a broader range
of disabilities than many previous writings. An example of this the inclusion
of women with developmental disabilities, a group that has traditionally
been neglected in volumes on women with disabilities. Second, the volume
deals with issues that often have been neglected such as disability and
ethnicity; the moral dilemma between reproductive rights and disability
rights; and an analysis of the exclusion of women with disabilities from
the women's movement. The volume also includes a discussion about girls
with disabilities. This is a book that everyone interested in the lives
and experiences of women with disabilities should read.
TITLE: Feminism and disability
AUTHOR: Hillyer,
B.
PUBLICATION INFORMATION:
1993
University
of Oklahoma Press
1005 Asp Avenue
Norman, OK 73019-0445
Written out of a need
in the feminist movement to include women with disabilities and a need in
the disability rights movement to address the unique experiences of women,
Feminism and disability combines the personal, political, and intellectual
aspects of feminist theory and disability theory. Hillyer discusses such
issues as body awareness, community, nature and technology, and the ways
in which cultural standards of language, independence, and even mother-blaming
are constructed. She also challenges political movements which stress productivity
and normalization in order to include more types of people and more aspects
of the human condition.
TITLE: Feminist perspectives of family
care: Policies for gender justice
AUTHORS: Hooyman,
N. R., & Gonyea, J.
PUBLICATION INFORMATION:
1995
Sage Publications
P.O. Box 5084
Newbury Park, CA 91359
Hooyman and Gonyea
critically examine the act of caregiving through a feminist perspective.
Given that over 75% of care provided to family members is provided by
women, the authors analyze the impact of this caring on women's economical,
social, and personal experiences. Furthermore, they examine how changing
economic structures, changing families, and the changing workforce have
affected the lives of women who provide care. The authors argue for structural
changes in the economy, social institutions, and attitudes in order to
improve the lives of women. Hooyman and Gonyea also explore the implications
for social policy if caregiving is defined as a women's role and how current
social policies are oppressive to women. Their recommendations for change
include workplace supports, health care and long term care policies, and
economic and social supports for caregivers.
TITLE: Women
and disability
AUTHOR: Lonsdale,
S.
PUBLICATION INFORMATION:
1990
St. Martin's
Press
175 Fifth Avenue
New York, NY 10010
Lonsdale explores how
women with physical disabilities experience the double discrimination of
being both a woman and a disabled person in society. Placing physical disability
in a social and political context rather than an individual one, she uncovers
how women with disabilities have been rendered invisible, how they see their
self image and body image, how physical disability often leads to dependence,
and how women experience a loss of civil liberties and how they face discrimination.
Lonsdale also considers the ways in which these situations can change for
women, specifically, how policy practices can change so that women can achieve
greater independence. Chapters include subjects such as the social context
of disability, invisible women, self image and sexuality, employment, financial
consequences of disability, discrimination, and independence.
TITLE: Voices from the shadow: Women
with disabilities speak out
AUTHOR: Matthews,
G. F.
PUBLICATION INFORMATION:
1983
The Women's
Educational Press
16 Baldwin Street
Toronto, ON
CANADA
This book explores the
lives of women with disabilities in Canada and is based on interviews with
45 women with disabilities. The author herself has a physical disability
and the book is a mixture of her own autobiography and the interviews. The
result is a very readable and interesting account of the lives of women
with disabilities, some of whom live in institutions and others who live
in the community.
The book is candid
in its critique of the medical and rehabilitation professionals, institutions
and the attitudinal and physical barriers in society. It explores the
feelings of women with disabilities about themselves and their relationships
with others. It points out that many doctors and social workers as well
as society in general think that women with disabilities are asexual and
therefore not in need of information on birth control or what is possible
in the way of having children or a sex life. Other issues addressed are
employment, education, housing, parenting, accessibility and social and
governmental assistance. The introduction to the book is written by Pat
Israel and Cathy McPherson, "two feminists with disabilities" (as they
call themselves). They discuss, among other things, the relations between
the disability rights movement and the women's movement and criticize
how un-accessible the women's movement has been for women with disabilities.
TITLE:
Feminist research and "community care"
AUTHOR: Morris,
J.
PUBLICATION INFORMATION:
1991
In J. Morris,
Pride against prejudice: Transforming attitudes to disability
(pp. 146-168). Pittsburgh: New Society Publishers.
New Society Publishers
4527 Springfield Avenue
Philadelphia, PA 19143
In this chapter, Morris
argues that while feminists have paid much attention to "community care"
policies, they have virtually ignored the experiences of disabled women.
She asserts that feminist concerns about women's roles as caregivers must
be re-examined from a disability perspective. Traditionally, feminists
have rejected community care policies which depend on women's unpaid labor
in the home, thereby excluding women from the labor market and reinforcing
their economic dependence on men. While these feminists would call for
community care in residential settings, Morris argues that disabled people
want services within the community, and therefore reject the traditional
feminist view of community care.
The author claims
that the differences between these two views is because the feminists
who are writing and researching in the area of women and care do not actually
need physical care themselves. In ignoring the experiences of those women
who need care, they silence disabled women and force them into the role
of the other. These feminists only see women as carers, not as those being
cared for, thereby legitimizing one side and marginalizing the other.
In response to these
feminists, Morris offers a critique from a disabled feminist perspective.
She argues that research needs to examine the meaning of "caring for"
and "caring about" and especially the meaning of home (separated from
the political feminist critique of the family). She asserts the feminist
scholarship needs to understand this issue from a disability perspective
and to see as the goal disabled women living in the community and receiving
supports from caregivers whose work is valued, appreciated, and adequately
compensated.
TITLE: Independent
lives: Community care and disabled people
AUTHOR: Morris,
J.
PUBLICATION INFORMATION:
1993
Macmillan
Press
Hound Mills
Basingstoke
Hampshire RG21 2XS
ENGLAND
This book is a qualitative
study which explores the experiences of disabled people who receive help
with daily living activities. Based on in-depth interviews with 50 people
and using a feminist perspective and a disability rights perspective,
Morris challenges the discourse around community care policies. She illustrates
how residential care is often replaced by institutionalization in community
settings, and further challenges policy makers and those who provide care
to recognize the basic civil rights of people with disabilities, and that
part of their civil rights is to receive physical help.
TITLE: Pride
against prejudice: Transforming attitudes to disability
AUTHOR: Morris,
J.
PUBLICATION INFORMATION:
1991
New Society
Publishers
4527 Springfield Avenue
Philadelphia, PA 19143
Morris, a disabled feminist
and activist, provides a feminist analysis to the study of the experiences
of women with disabilities. Basing her arguments on the feminist principle
that the personal is political, Morris eloquently challenges such issues
as prejudice, abortion, and the notion that people with disabilities lead
lives that are not worth living. She further discusses the history of people
with disabilities in institutions and under the Nazi regime. Morris also
examines the meaning of disability in Western culture and the meanings of
a history of segregation, dependence, and an emerging independence of people
with disabilities. Pride against prejudice is a commentary on political
activism and rights, and stresses the need to fight back against the prejudice,
stereotypes, and oppression of an ableist culture.
TITLE: The
politics of caregiving
AUTHOR: Munford,
R.
PUBLICATION INFORMATION:
1994
In M. H.
Rioux & M. Back (Eds.), Disability is not measles: New research
paradigms in disability (pp. 265-284). North York, ON: The G.
Allan Roeher Institute.
The G. Allan Roeher
Institute
Kinsmen Building, York University
4700 Keele Street
North York, Ontario M3J 1P3
CANADA
This chapter explores
the meaning of care to those who give and receive it in order to challenge
the current way it is organized. It examines the ways in which the caregiving
relationship can be changed and how alliances with people with intellectual
disabilities can be formed. The author bases her argument on the premise
that non-disabled researchers and writers need to situate themselves in
the research project and in the particular situation they are writing about.
Munford's chapter
is divided into three sections. The first section provides a context by
discussing important influences on the researcher and writing process.
She argues that researchers must understand how their research can reinforce
the powerlessness of those they are researching. She feels that researchers
need to form equitable relationships with the people with disabilities
whom they are researching. The second section focuses on important concepts
which are necessary to understand what happens in a caregiving relationship.
The third section explores the role of social policy in constructing the
lives of people with disabilities. The author argues for the importance
of examining social policy in terms of disability of a social and political
category. Hopefully then social policies will have possibilities for choice
and empowerment for people with disabilities.
TITLE: Bridging
the gap: A national directory of services for women and girls with disabilities
AUTHOR: National
Clearinghouse on Women and Girls with Disabilities
PUBLICATION INFORMATION:
1990
Educational
Equity Concepts
114 East 32nd Street
New York, NY 10016
The National Clearinghouse
on Women and Girls with Disabilities has compiled a national directory
of services and support groups for women and girls with disabilities.
This document contains more than three hundred listings of organizations
that provide services to meet the needs of women and/or girls with disabilities.
Each entry includes organization name, address, telephone number, contact
person, region served, date established, whether they respond to inquiries
by phone or by mail, if they have a newsletter, and a brief description
of their programs and services. The services included in this directory
cover a wide range of areas of importance for women with disabilities
such as educational services and offices of disability services at universities;
support groups and other self-help groups for women with disabilities;
government and non-government organizations focusing on or including women
with disabilities; generic services which also provide services for women
with disabilities such as rape crises and planned parenthood; and more.
This is a unique directory that will be of extreme importance for women
with disabilities in terms of breaking the isolation they so often experience
and helping them find appropriate services and supports. As the first
national directory of services and support groups for women with disabilities,
it will undoubtedly serve to help women with disabilities find each other
and build connections.
TITLE: The
tentative pregnancy: Prenatal diagnoses and the future of motherhood
AUTHOR: Rothman,
B. K.
PUBLICATION INFORMATION:
1986
Viking Penguin
40 West 23rd Street
New York, NY 10010
The technology that makes
prenatal screening and diagnosis possible is usually celebrated by the medical
establishment as a triumph for modern medicine as a means to prevent disability.
This technology is also seen as a way to improve the lives of families and
societies. This book deals with this new technology but goes beyond the
technology itself and looks at how it affects the lives of women who use
it. This is a study of 120 women who have used amniocentesis, the most used
form of prenatal testing. All the women in this study who received "bad
diagnoses" (that is the fetus was diagnosed as having some form of a disability)
made the decision to have an abortion. Rothman describes with great sympathy
the pressure on women to use the technology and to undergo abortion if the
fetus is "defective." Rothman sees these women as victims of technology,
sacrificing themselves to spare their children from suffering.
The subject of this
book is at the center of one of the dilemmas faced by feminists with disabilities,
that is, feminists with disabilities who have participated in the fight
for women's rights to control their own bodies, who are now faced with
the fact that this right is used to selectively abort "defective" fetuses.
TITLE: Women
with disabilities: A survey of health-related experiences
AUTHORS: Savage,
A., & Georgeson, S.
PUBLICATION INFORMATION:
1989
The Disabled
Persons Assembly (NZ), Inc.
P.O. Box 143, 629 Main Street
Palmerston North, NEW ZEALAND
This book from New Zealand
documents health experiences of women with disabilities. It is based on
interviews with 60 women from three disability categories: 34 of the women
had physical disabilities, 12 had intellectual disabilities, and 12 had
psychiatric disabilities. The authors conclude by summarizing some of the
findings of the study, and state that the experiences of these women show
some fundamental issues about health and the health services they receive.
Among the things they list are (1) lack of information regarding women with
disabilities about the nature of their disability, as well as the implications
of these disabilities; (3) the unequal relationships between health professionals
and women with disabilities; (4) women with disabilities are not listened
to and are excluded from decision making about their own health; (5) lack
of information about side effects of medications; (6) disability is negatively
viewed by health professionals and the general public alike; (7) women with
disabilities fear being integrated into a community that does not have the
resources to support them; and (8) women with disabilities view the availability
of both personal and community support as vital.
The last section
of the book provides recommendations for change based on the findings
of the study.
TITLE: Disabled,
female and proud! Ten stories of women with disabilities
AUTHOR: Rousso,
H. (Ed.)
PUBLICATION INFORMATION:
1988
Exceptional
Parent Press
605 Commonwealth Avenue
Boston, MA 02215
This book is edited by
Harilyn Rousso, a woman with a disability, with photographs by Flo Fox,
a visually-impaired photographer, and written by ten contemporary women
with disabilities. These ten women offer their experiences and ideas about
work, relationships, pregnancy, motherhood, life-styles, and how they got
to where they are now. Each woman discusses the prejudice, barriers and
difficulties she faced and offers advice to the reader about how to overcome
these. The jobs these women hold span a variety of fields: some of them
work in the creative arts; others in mathematics and science; some work
in business; and others in human services. The ten women have various disabilities,
and are of diverse age, race, class and language backgrounds.
The book grew out
of the work of Harilyn Rousso, a social worker and therapist, who created
a big-sister project for women and girls with disabilities in New York
City to address the lack of role models in the media and the community
for young women with disabilities. The book is intended to serve as a
much needed resource to counteract the isolation so many women with disabilities
experience in their struggles with work and life. It is also intended
to provide positive role models for women and girls with disabilities.
TITLE: With wings: An anthology of literature
by and about women with disabilities
AUTHORS: Saxton,
M., & Howe, F. (Eds.)
PUBLICATION INFORMATION:
1987
The Feminist
Press
City University of New York
311 East 94th Street
New York, NY 10128
This is a collection
of literary writings by and about women with disabilities. This anthology
of essays, stories, and poetry conveys the experiences and feelings of
women with disabilities. Among the 30 contributors to this book are such
well-known names as Alice Walker, Adrienne Rich, Muriel Rukeyser, Vassar
Miller, Nancy Mairs, Laurel Lee and Mary Wilkins Freeman. A powerful and
moving book about the strengths, the struggle, the dignity, the intelligence,
the humanity, and the courage of women with disabilities.
TITLE: A
mother's work is never done: Constructing a "normal" family life
AUTHOR: Traustadottir,
R.
PUBLICATION INFORMATION:
1995
In S. J.
Taylor, R., Bogdan, & Z. M. Lutfiyya (Eds.), The variety of community
experience (pp. 47-65). Baltimore: Paul H. Brookes Publishing
Co.
The author examines the
everyday lives of families of children with disabilities. She explores the
ways in which the family attempts to construct an "ordinary" or "normal"
family life. Traustadottir analyzes the gendered organization involved in
constructing and maintaining a normal family life. Through qualitative research
based on interviews and participant observation, Traustadottir found that
families of children with disabilities devote much time trying to lead a
"normal" family life. For the most part this meant following the traditional
family pattern of full time wife and mother and working father. She suggests
that presence of disability in the family causes parents to compensate by
conforming as closely as possible to traditional gender roles. The author
also discusses implications for professionals, stating that they need to
be aware of individual perspectives of families. She also addresses how
broader socio-cultural issues such as class, race, ethnicity, and gender
influence the lives of families of children with disabilities.
TITLE: Disability
reform and the role of women: Community inclusion and caring work
AUTHOR: Traustadottir,
R.
PUBLICATION INFORMATION:
1992
Unpublished
Doctoral Dissertation
Syracuse University
Syracuse, NY 13244
This dissertation is
a feminist qualitative study of the role of women in the community inclusion
of people with developmental disabilities. The author demonstrates that
despite the fact that women constitute the vast majority of those who do
the day-to-day work of inclusion, their contributions go unnoticed and are
invisible. Through in-depth interviews and participant observation, the
author examines women's caregiving and relationship building in the areas
of family as mothers of children with disabilities, in the human service
system as paid workers, and in the context of friendships. Crucial to this
study is the idea that caring is not a personality trait inherent in being
a woman, rather it is created through social interactions. Women are recruited
for caregiving through powerful social arrangements and this social construction
of women as caregivers continues throughout their lives.
The analysis outlines
the multiple ways women's work is made invisible, and that the field of
disability studies does nothing to make this work visible. In fact, it
often exploits women by not recognizing and understanding the work that
they do. The author concludes by articulating areas for change in the
fields of feminist scholarship and disability policy.
TITLE: The
meaning of care in the lives of mothers of children with disabilities
AUTHOR: Traustadottir,
R.
PUBLICATION INFORMATION:
1991
In S. J.
Taylor, R. Bogdan, & J. A. Racino (Eds.), Life in the community:
Case studies of organizations supporting people with disabilities
(pp. 185-194). Baltimore: Paul H. Brookes Publishing Co.
In this qualitative chapter,
Traustadottir explores the gender difference in caring for a child with
a disability within the family. She discovered that the responsibility for
caring is based on gender. The study revealed the term "caring" as a complex
phenomenon that has at least three meanings. Caring for, the work, means
acquiring specialized knowledge and techniques which are associated with
professional work (not traditional mother work). The second definition is
caring about, the love. This refers to relationships and emotions. The third
definition is the extended caring role. The meaning of care extends from
a woman's own child to broader community or societal concerns surrounding
people with disabilities and the way they are treated in society.
The author also discusses
gender roles and the responsibility of caring. The woman is usually responsible.
This begins when she decides to keep her child at home rather than a residential
setting. This is almost always the mother's decision because it is understood
that she will be the primary caregiver. In addition to this work, she
is responsible for the housework and other family work. Furthermore, the
baby is not seen as a restriction on family life if only the mother is
restricted. However, if the family feels restricted then the situation
is considered problematic. Some women see the job of caring as their "natural"
responsibility, while others resist this traditional gender role.
The author concludes by stating that disability studies needs to look
at gender as a critical issue and needs to take notice and look critically
at issues of gender and the roles of mothers and fathers in families.
TITLE: Women with disabilities: Issues,
resources, connections, revised
AUTHOR: Traustadottir,
R. (updated by Harris, P. J.)
PUBLICATION INFORMATION:
1997
- Syracuse, NY: Center
on Human Policy, Syracuse University.
The materials that
have been compiled into this information package on women with disabilities
are intended to serve as an introduction for those who are interested
in learning about the lives of women and girls with disabilities and the
specific issues they face in today's society. In addition to introducing
the lives and experiences of women with disabilities, the primary purpose
of this package is to provide an overview of the existing materials in
an attempt to make them more accessible to those who are interested in
this topic.
The package is divided
into five parts. Part I contains an article which provides an overview
of the literature and some of the major issues facing women with disabilities
in today's society. Part II is an annotated listing of resources written
by and/or about women and girls with disabilities. Part III contains information
about teaching materials about women and girls with disabilities. This
part also lists other practical materials, such as a manual for accessibility.
Part IV provides information about where to find services and support
groups for women and girls with disabilities and how to start networking
projects. This part also contains information about women's periodicals
and organizations which include women with disabilities. Finally, Part
V lists World Wide Web sites about and by women with disabilities.
TITLE:
Research by/for/with women with disabilities
AUTHOR: Wight-Felske,
A.
PUBLICATION
INFORMATION: 1990
The G. Allan Roeher
Institute
Kinsmen Building
York University
North York, ON M3J 1P3
CANADA
The Roeher Institute
is a Canadian-based information and advocacy organization for people with
cognitive disabilities. They address a wide range of issues, including
community living, jobs, and support, and provide information about issues
concerning disability rights. This specific publication has been written
to raise the awareness of researchers to the issue of disability and to
give a voice to women with disabilities. Specifically, it outlines the
ways in which women with disabilities have been excluded from research,
provides a framework for research for and with women with disabilities,
presents a guideline for non-stereotyping language, and also address the
ways in which people can be informed about women and disabilities.
TITLE: Building
community: A manual exploring issues of women and disability
AUTHOR: Women
and Disability Awareness Project
PUBLICATION
INFORMATION: 1989
Educational Equity
Concepts
114 East 32nd Street
New York, NY 10016
This manual examines
the connection between discrimination based on gender and discrimination
based on disability, and addresses disability as a political issue; civil
rights issue; as a human relations issue; and as a personal experience.
It is intended to build community between diverse groups. The authors
point out that the lack of opportunities within schools and organizations
to learn about what it means to be a person with a disability results
in widespread ignorance about people with disabilities. The authors intend
the manual partly for use in schools as a general introduction to the
topic, for teachers as well as students, and partly to be used within
women's organizations to raise general awareness about issues faced by
women with disabilities and strategies to meet the needs of women with
disabilities within the organizations. In disability rights organizations
the manual could serve to raise awareness about the particular needs of
women with disabilities and how their lives and experiences differ from
those of men with disabilities. In both women's and disability organizations
the manual can be used to train staff as well as to inform the general
membership about the connection between discrimination based on gender
and disability.
The manual contains
background information on disability rights issues and about women and
girls with disabilities, an annotated bibliography and selected readings
about women with disabilities. Lastly, the manual contains very practical
guidelines and materials to conduct workshops on women with disabilities,
including workshop formats that will allow activists, educators, and other
trainers to explore disability issues in a wide variety of settings. This
is a very practical and informing manual for anyone interested in the
connection between gender and disability.
This manual was first
published in 1984. The 1989 edition has been expanded to include the specific
needs of young women with disabilities.
Source: Syracuse University School of Education
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